You know, I wish I could stop blogging about my health. I wish I could go back to writing about bone broth and running and yoga and fun recipes.
But sadly, I don’t think that is going to happen for awhile.
I had my follow up CT scan a little while back. I had it while enduring that horrible case of bronchitis and the results were not great.
The newest reading is leaning towards something called sarcoidosis: a mysterious disease that is basically an inflammation of the lungs or other organs. It can also affect the eyes. Now we don’t know for sure that I actually have this disease. It could be the bronchitis. It could be the MAC. It could be an irritation.
I am seeing an ophthalmologist tomorrow. Good thing I was due for a check up anyway. My doctor told me to ask for the “full work up”. If you get sarcoidosis in your eyes, it can affect your vision. Doesn’t that sound awesome?!
So tomorrow is a busy day. I am going to the chiropractor at 9 am, then I have an eye appointment t 11:15 and then I am meeting my plastic surgeon at 2:45. I am exhausted just thinking about those appointments. I am so tired of being a sick person. It’s not fun anymore. Ok, really, it has never been fun. All those cliches about appreciating your health are true. I got tired walking through Target today. I am tired of being tired.
What’s that? Why am I meeting with my plastic surgeon? Because we are planning out my upcoming exchange surgery. Yea! I have been dealing with these uncomfortable tissue expanders in my chest for almost a year and it has become really annoying. These things on my chest are as hard as rocks and twice as painful. They dig into my chest. When I sleep on my side, I wake up in the night with stabbing pains. Tissue expanders are horrible and thank goodness, they are coming out in May. I know I’m supposed to be looking forward to having soft squishy foobs after the exchange but I am so over it. I don’t even care. I just want to not be in pain anymore.
Back to the sarcoidosis conundrum, my doctor is curious to see what is going on. She is inclined to to some procedure where they put me under, stick a tube down my throat and take tissue samples. But here’s the thing, if it’s sarcoidosis, she will not immediately treat me (only treatment is steroids) and if it’s MAC, she won’t treat me either. We’re kind of hoping that my body takes care of this on it’s own. So what’s the point of going under general anesthesia if she’s not going to treat me anyway?
The only way I think we could do it is if she came in during my exchange surgery in May and did the procedure then but that would mean rescheduling my surgery and I don’t really want to do that.
Are you confused? Try living it.
I’m just fed up with it all. I just want to feel normal again. I know at this point I’m just along for the ride. Please keep me in your thoughts and prayers. I still need them.
April 14, 2014 at 6:20 pm
Hey Beth! I just caught your last two entries – sorry you are not feeling great, but I’m so glad the CT scan came back showing no cancer. Our thoughts and prayers are with you and your family. Rani (CCNS)
April 15, 2014 at 6:41 am
Wanted to congratulate you for making it to the anniversary of your surgery and on being cancer free for nearly one year. But now you have this lung thing and are still in pain, so I’m sure any celebrating will be on hold for awhile. As I told you before, I had a thing in my lung too and one of the possibilities was sarcoidosis. I knew how worrisome it is. Mine was a nasty infectious spot, may be from aspirating some food. I did take Cipro for a year, but am fine now. Hope yours turns out not to be anything serous and after your surgery, you and your family can start putting all these health issues in your rearview mirror. Hugs of health.
April 22, 2014 at 1:48 pm
Still praying for you and your family, Beth, and my friend who has stage 3 ovarian cancer, and another friend’s child who was critically injured in a crime. I wish I could do something helpful for all of you. I’m praying for the day when you will leave your illnesses behind and enjoy good health again.