Man. Taxol is rough. It is rough in a different way than AC chemo. But it sucks all the same.
Tuesday and Wednesday were ok. Then on Thursday I got body aches like when you have the flu. These aches soon turned to a pinching feeling in all of my joints.
I was laying in bed and it felt like lobsters were pinching me. It started in my right shoulder and then worked it’s way down my right side all the way down to my toes and then it worked it’s way up my left side. And then is was a flurry of random pinches all over.
Advil couldn’t touch it. Neither could Aleve. Eventually I pulled out the big guns but that made me sleep in 13 hour shifts.
Aches pain and fatigue throughout the week off and on.
And my eyebrows are falling out.
And I am going to do this three more times.
Good thing is there has not been much nausea and I have been sleeping a lot but not loopy.
I am still getting cards from people and I can tell you it brightens my day. I never knew the power of the U.S. Postal Service. I plan to reciprocate with cards when I feel better. Right now it is hard to do much of anything.
Thank you, thank you to all of you who have kept me and my family in your thoughts and reached out to us. It means so much to all of us to know that you care.
And now back to me…
Yesterday, my husband and I were playing a board game with our youngest. We played it in my bed. I could barely lift my arms so on my turn, I rolled the die and the child move my piece for me. That is how fatigued I am at times.
Sometimes I lay in bed for hours just not moving a single muscle. It’s like being in a coma.
This stuff is rough.
Once again, I just don’t understand how people who have jobs handle cancer treatment.
I’m unemployed and I can barely handle it.
August 3, 2013 at 4:13 am
I’m so sorry you are in so much debilitating pain. My heart goes out to you. Your post brought tears to my eyes. A memory of having every joint in my body burn with pain due to a malfunctioning thyroid came back to me. I was miserable and pretty much non-functioning for a week. Can’t imagine suffering that for longer. Praying you get some relief before your next round. Sleeping as much as you can sounds like a pretty good solution. Hugs would probably hurt, so I’m blowing you a loving kiss.
August 3, 2013 at 8:50 am
Sorry to hear you are in such pain and have to go through this. If I could change it, I would. Just remember this is making you better and continue being strong in your battle. My thoughts and prayers are with you always. XOXOXOXO