I just had the 2nd follow up CT scan of my lung. I meet with my pulmonologist next week. From what the reports says, it looks like some stuff cleared up and some stuff stayed the same and some stuff got worse. Great. I’m sure it doesn’t help that I currently have a raging case of bronchitis anyway. It hasn’t been fun. BUT IT’S NOT CANCER!
I did receive my very own inhaler a couple of weeks ago. Just for me! I’ve had upper respiratory issues for most of my life; chronic bronchitis from childhood up until just a couple of years ago. Acupuncture changed my health drastically. I went from three or four serious upper respiratory illnesses a year to zero.
I did get fifth’s disease a couple of years ago but since I started getting regular acupuncture, I’ve been very healthy…except for the whole cancer thing.
I had missed several weeks of acupuncture and I caught a cold that quickly went to my chest and then knocked me on my tush.
And it’s very frustrating.
But I digress, both my kids have had inhalers since infancy. When I have had problems breathing in the past, I just sneak one of theirs.
When I met with the pulmonologist she asked me a bunch of questions like, did I grow up with adults smoking in the house? Yes…three of them.
Do I have a family history of asthma? You bet. But I didn’t know about it until my 30′s when I reunited with my birth family. The adoption agency didn’t feel it was important to mention that my grandmother, mother and several uncles were asthmatic, even though it was in my file. Stupid. Stupid and dangerous because when my infant had what we thought was croup, the doctors didn’t suspect asthma because neither my husband nor I believed there was any family history of it. It was frustrating then.
My birth mom was all, “Why did the agency make me sit for hours answering medical history questions if they weren’t going to share them with your parents?”
But don’t get me started on open records and adoptees rights to their medical histories and original birth certificates (of which I now have both!!!) because we will be here all day.
So the doctor thinks I’ve always had low level asthma but that it really got triggered by recent events.
“Stop using your kids’ inhalers. I’m giving you one of your own.”
You know, this breathing crap started this summer during chemo. I would be sitting there reading a book and hear this wheezing sound and think, “What’s that noise?” and then “Oh! It’s me!”
I told my oncologist and she just blew me off.
So I just used my kids’ inhalers when I struggled because obviously this all must be in my head and I was just being a baby as my ONC implied.
But it turns out, I most likely have asthma that has been brought on by the chemo as well as a nasty bacteria in my lung.
Whose laughing now, oncologist?!!
Well…not me because being able to breathe is a big deal. We take it for granted until we have problems, and then it’s a real problem, you know?
The inhaler helps sometimes but the other day, I spent 3 hours on the couch with what felt like an elephant sitting on my chest. And the inhaler didn’t help at all and it was kind of scary. I didn’t really know what to do but I knew I wasn’t being a baby because I’ve seen my kids go through the same thing.
Should I have gone to urgent care? I don’t know. This is all new to me.
Eventually, the tightness passed but it was exhausting.
So all I can really do is keep trying to boost my immunity.
I’ve been juicing and making green smoothies. I even went to Jamba Juice and tried my first and second shots of wheat grass. It really wasn’t bad. Kind of sweet and they give you and orange slice to chase it with. Tastes better than tequila.
I went to the birthday party for a friend and midway through dinner, I was so exhausted, I put my head down on the table. I was home and in bed by 8:30. Lame.
I seem to finally be coming out of it but like I said, it’s frustrating.
Yesterday, I got out of bed for about 20 minutes, took a shower and was so exhausted, I crawled back in bed and stayed there the rest of the day. Not cool.
I’ve been reading. I’ve read three books by Liane Moriarty. I am currently on a fourth one. So far, “What Alice Forgot” is my favorite. It’s about a woman who bumps her head at the gym and forgets the last ten years of her life including the birth of her children and the breakdown of her marriage. I really enjoyed it.
I finished Harry Potter Lego (it was highly anticlimactic) and now I am playing Pokemon Y on my very own 2ds. My kids think I am the coolest mom ever. My little one and I have Pokemon battles. He keeps winning. Hey, at least we’re interacting, right?
And now I am trying to justify a trip to McDonald’s drive thru in my pajamas because I am craving an Egg McMuffin. Who’s going to see me? I’ll stay in the car. God? I think she’ll understand. Can I do it if I put on my robe?
Also, I’ve decided it’s ok to have a McMuffin as long as I have some fresh squeezed beet carrot apple spinach juice with it. My juicer has been getting a workout but golly I hate cleaning that thing!
Maybe I’ll just stick a sign on my back that says, I give up and be done with it.